CYSTEAMINE is a Schedule H drug.
Cysteamine works by reducing the amount of cystine (an amino acid) in the body.Cysteamine is used to treat nephropathic cystinosis, a rare genetic condition that causes a build-up of cystine in the kidneys and other organs. Too much cystine can cause kidney failure or other medical problems.Cysteamine is a prescription medication used to treat cystinosis of the kidneys and eyes. Cystinosis is a rare condition that causes cystine, a protein building block, to build up in the cells of the body. Cysteamine belongs to a class of medications called anti-cystine agents, which help by decreasing the levels of cystine in the body.


CYSTEAMINE is generally used to treat: Cystinosis

Frequently Asked Questions

Q: Is it safe on my liver?
A: Not Safe

Q: Is it safe on my kidney?
A: Not Safe

Q: Can I take it with alcohol?
A: Not Safe

Q: Is it safe for children?
A: Not Advised for age < 6yrs

Q: Can it be taken during pregnancy?
A: Not enough studies to prove Risk – Ask your Doctor

Q: Is it safe to take for someone breastfeeding?
A: Check with your Doctor first

How Do I Take It?

Route of Administration: Oral,


  • Do not give a whole capsule to a child younger than 6 years old.
  • Do not use this medication beyond the dosage specified or longer than recommended.
  • Withheld this medication if skin rash, central nervous system symptoms, gastrointestinal ulceration and bleeding occurs.
  • Follow all directions on your medicine label and package.You should not use this medicine if you are allergic to cysteamine or penicillamine.
  • Procysbi should not be given to a child younger than 2 years old without a doctor’s advice.
  • Follow all directions on your prescription label. Your doctor may occasionally change your dose to make sure you get the best results.
  • Do not take this medicine in larger or smaller amounts or for longer than recommended.For a child younger than 6 years old taking Cystagon, the capsule should not be swallowed whole or choking could result. To make it easier to swallow the Cystagon capsule: Open the capsule and sprinkle the medicine into a small amount of applesauce, apple juice, or orange juice.
  • Take Procysbi with fruit juice, but not grapefruit juice.
  • You may take Procysbi with or without food, but take it the same way each time.
  • To take Procysbi with food, eat only a small amount (1/2 cup) of food within 1 hour before or 1 hour after you take the medicine.
  • To take Procysbi without food, take the medicine at least 30 minutes before or 2 hours after a meal.
  • Do not crush or chew a Procysbi capsule or the medicine inside it. Swallow the capsule whole.
  • Avoid eating foods that are high in fat close to the time that you will take a dose of cysteamine.

Symptoms of Overdosage

CYSTEAMINE over-dosage can result in: Difficulty Breathing

Common Side-Effects

CYSTEAMINE : Constipation, Hives, Confusion, Dizziness, Depressed Mood, Head Headache, Throat Soreness, Fruity Odor On Breath, Body Discoloration, Weight Loss (unintentional), Weakness (generalized)

Serious Side-Effects

CYSTEAMINE : Stomach Pain, Vomiting, Diarrhoea, Skin Rash, Drowsiness, Fever, Loss Of Appetite, Nausea

Rare Side-Effects

CYSTEAMINE : Seizure, Increased Thirst, Fatigue (tiredness)

Technical Classification


Storage Conditions

Room Temperature (Between 15 To 25 C)

Available Alternatives

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